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Current GenV collaborations

Parents and children who join GenV can also take part in other studies looking at important issues. Joining up GenV with other studies can increase their value. It also cuts down costs, effort and doubling-up. For example, GenV data could help a study look at the benefits of a new treatment for a much bigger group of children.

All studies working with GenV have ethical approval. If you are asked to join another study, you decide if you want to take part at the time.

See below some of the projects working with GenV.

OPTIMUM Trial (Optimising Immunisation Using Mixed Schedules) 

OPTIMUM Trial (Optimising Immunisation Using Mixed Schedules) 

Food allergy is more common than it was 20 years ago. Having a different whooping cough vaccine at age 2 months may protect against food allergy. The OPTIMUM trial is testing this.

About the collaboration

The OPTIMUM trial and GenV are asking some families to be part of both projects. This raises awareness of OPTIMUM. It also helps to better understand food allergies in children.

For GenV parents - who can join?

You may be able to join OPTIMUM if:

  • Your baby hasn’t had their first vaccinations.
  • You can travel to The Royal Children’s Hospital.

What should you expect?

If GenV thinks you may be eligible, it may send you a text message about the OPTIMUM trial. You can choose to contact OPTIMUM to learn more. If you join OPTIMUM, you can permit our two projects to share information about you and your child.

Contact OPTIMUM

Project website: https://www.mcri.edu.au/research/projects/optimum-study

Contact email: optimum@mcri.edu.au

Lead Investigator: Associate Professor Kirsten Perrett / Murdoch Children’s Research Institute

 

Learn more: https://www.mcri.edu.au/news-stories/babies-sought-whooping-cough-vaccine-clinical-trial-help-prevent-allergies

Victorian Skill Loss Registry

Victorian Skill Loss Registry

Some young children stop gaining new skills. They can even lose skills they once had – like language and walking. With funding from the Medical Research Future Fund (MRFF), GenV and Monash University are setting up a Victoria-wide skill loss registry. We aren’t aware of any other registry like this anywhere in the world.

About the collaboration

Monash and GenV are asking some families to be part of both projects. Children could enter the Skill Loss Registry earlier than otherwise. This could show why some children lose skills, and what we can do to help.

For GenV parents - who can join?

You may be able to join the Skill Loss Registry if:

  • You tell us in your GenV & Me survey that your child has lost skills they once had.

What should you expect?

If GenV thinks you may be eligible, we may ask to refer you to the Skill Loss Registry. If you agree, the Skill Loss Registry will contact you directly. If you join the registry, you can permit our two projects to share information about you and your child.

Contact Skill Loss

Project website: Coming soon

Contact email: Coming soon

Lead Investigator: Professor Katrina Williams / Monash University

 

Learn more: https://www.genv.org.au/skill-loss-registry-first-of-its-kind-in-victoria/

Twins Research Australia (TRA) 

Twins Research Australia (TRA) 

TRA has been running for over 40 years. It’s a registry that supports twin and family studies across Australia. TRA has made many discoveries – these span asthma, allergies, epilepsy, breast cancer and more.

About the collaboration

GenV and TRA are inviting families with twin or multiple births to join both projects. They could enter TRA much earlier than they do now. Joining a twin registry to a population study like GenV is unique. Together, TRA and GenV will help understand how genes and environment shape health and development for all children.

For GenV parents - who can join?

You may be able to join TRA if:

  • Your twins, triplets (or more) are in GenV.

What should you expect?

If you have twins or multiples, GenV may ask if we can refer you to TRA. If you agree, TRA will contact you directly. If you join TRA, you can permit our two projects to share information about you and your child.

Contact TRA

Project website: https://www.twins.org.au

Contact email: info@twins.org.au

Lead Investigator: Professor John Hopper / The University of Melbourne