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GenV Special Care Nursery registry scoping report

  • Authors

    Jing Wang1,2, Lauren Davenport1, Hayley Warren1, Lana Collins2, Jeanie Cheong1,3,4, Melissa Wake1,2

  • Affiliation

    1 – Murdoch Children’s Research Institute, Royal Children’s Hospital, Parkville, Victoria, Australia
    2 – Department of Paediatrics, The University of Melbourne, Parkville, Victoria, Australia
    3 – Department of Obstetrics & Gynaecology, The University of Melbourne, Parkville, Victoria, Australia
    4 – Neonatal Services, Royal Women’s Hospital, Parkville, Victoria, Australia.

  • Publication date

    November 2020

  • Series number


  • Abstract

    Newborn babies who require specialist care account for substantial immediate and lasting burden of disease. The Australian and New Zealand Neonatal Network (ANZNN) has made major contributions towards improving the quality and consistency of neonatal intensive care data collection, but no comparable data set exists for the babies admitted to a special care nursery (SCN). Working with newborn experts across the state, this report aims to inform interim and final decisions as to whether to implement an ANZNN-harmonised extraction of data for all such babies born across Victoria, Australia, and entering GenV over two full years from mid-2021. This report considers requirements, likely data set, feasibility, stakeholder acceptability and consultation requirements, and funding and resourcing needs. We conclude that an SCN data extraction appears feasible, would generate translatable evidence, and could lay the groundwork for a stand-alone ongoing registry post-GenV.

  • Keywords

    Special care nursery; Registry; Sick newborns; GenV

  • Citation

    Jing Wang, Lauren Davenport, Hayley Warren, Lana Collins, Jeanie Cheong, Melissa Wake (2020). Special Care Nurseries Registry Scoping Report. Generation Victoria Working Paper 2020-06. DOI: 10.25374/MCRI.13299806.