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The GenV Registries Group aims to improve knowledge about health problems and conditions. How, when and in whom do they develop? How common are they? What are their characteristics, and how do they progress? Can we improve their outcomes? The expert group helps GenV to support existing registries and develop new ones.



Interested in working with us?

If you would like to collaborate with GenV, please submit an EOI form for your registry or other research idea. For more information, please contact

We thank our Working Group members listed below: