Learn about GenV: your opportunity to create a healthier future GenV is a research project built by Victorian families for all families. If you join, you will contribute to healthier children, parents, and families in the future.
Improving care and development through world-class research GenV will work in partnership with Victoria’s health organisations to collect data that will enhance researchers' capacity to understand patient outcomes.
Comprehensive research for precision policy and service delivery GenV aims to transform how we conduct research into health and wellbeing, establishing the foundations for new approaches to data-led policy and strategy development, and the strengthening of service delivery.
Our achievements, partners and key people Learn more about GenV’s collaborative partnerships with leading universities, institutes, and service providers, and meet the people who help to bring our exciting vision to life.
Home\For parents\What data does GenV access? Back What data does GenV access? What data does GenV access? Once you join GenV, we access data and samples collected by other services for you and your child¹. Over time, this will cover physical and mental health, education, social and neighbourhood information. Sometimes services update your personal information or give identifier numbers so we can match families accurately. This part of GenV happens in the background. This means GenV takes little effort from you and helps us build a more complete picture of health and wellbeing. Want to know more? Scroll down to see the data and samples GenV has already accessed. Click the links to learn more about these data and samples, and why they are important. Questions or concerns? Check our frequently asked questions (FAQs). The table below shows what data and samples GenV has accessed so you always know. Click on each data or sample source to learn more. Newest sources are shown at the top. Data Sources Victorian Birthing Hospitals Victorian Birthing Hospitals Data Owner/s: Relevant birthing hospital and/or health alliance Data Type: Clinical data variables from hospital administrative datasets, Birthing Outcomes System, electronic and other medical records and tests around pregnancy and birth. Access Period: May 2025 – ongoing GenV Cohort:¹ GenV children born from 05/12/2020 onwards and their participating birth mothers. Pilot: Data Owner: Western Health Access Period: February 2022 – July 2022 GenV Cohort:¹ GenV children born at Joan Kirner Women’s and Children’s at Sunshine Hospital from 05/12/2020 to 12/2021 and their participating parents. Centre for Victorian Data Linkage (CVDL) Centre for Victorian Data Linkage (CVDL) Data Owner: The Victorian Department of Health Data Type: Victorian Perinatal Data Collection (VPDC) Victorian Death Index (VDI) Victorian Death Index – Death Registry Coded (COD URF) Victorian Admitted Episodes Collection (VAED) Victorian Emergency Minimum Dataset (VEMD) Victorian Alcohol and Drug Collection (VADC) Mental Health Community Support Services (MHCSS) Child Protection Services Dataset (CP) Public Health Event Surveillance System (PHESS) Community Health Services (CHMDS) Client Management Interface/Operational Data Store (CMIODS) Transmission Response Epidemiology Victoria Information System (TREVI) Family Services (IRIS FS) Family Violence (IRIS FV) Family Services – Cradle 2 Kinder (IRIS C2K) Public Housing (HIIP) / Housing Datamart (HD) Victorian Cancer Registry (VCR) Medicare Benefits Schedule (MBS) Pharmaceutical Benefits Scheme (PBS) Australian Immunisation Register (AIR) Births (part of the Births, Deaths and Marriages (BDM)) Access Period: July 2024 – ongoing GenV Cohort:¹ GenV children born from 05/12/2020 to onwards and their participating parents. Victorian Registry of Births, Deaths and Marriages Victorian Registry of Births, Deaths and Marriages Data Owner: The Department of Justice and Community Safety, Victoria Data Type: Child birth and child and parent death information Access Period: June 2024 – ongoing GenV Cohort:¹ GenV children born from 05/12/2020 onwards and their participating parents Pilot: Access Period: May 2021 – August 2021 GenV Cohort:¹ GenV children born at Joan Kirner Women’s and Children’s at Sunshine Hospital from 05/12/2020 to 08/2021 and their participating parents Victorian Infant Hearing Screening Program (VIHSP) Victorian Infant Hearing Screening Program (VIHSP) Data Owner: The Royal Children’s Hospital Data Type: Hearing screening and outcome data Access Period: 2024 – February 2025 GenV Cohort:¹ GenV children born from 05/12/2020 onwards. Sample Sources Victorian Pathology Providers Victorian Pathology Providers Biosample Source: Women’s and Children’s Pathology (The Royal Children Hospital) Austin Health Pathology Monash Health Pathology Northern Health Pathology Alfred Health Pathology Dorevitch Pathology Melbourne Pathology Australian Clinical Labs Biosample Type: Pregnancy serum Pregnancy plasma Group B Streptococcus (GBS) swab Access Period: April 2021 – October 2023 GenV Cohort:¹ Participating birth mothers of GenV children born from 05/12/2020 onwards Melbourne Children’s Bioresource Centre (MCBC) Melbourne Children’s Bioresource Centre (MCBC)Biosample Source: Victorian Clinical Genetics Services (VCGS) Biosample Type: Newborn Bloodspot Samples (NBS) Access Period: October 2021 – October 2023 GenV Cohort:¹ GenV children born from 05/12/2020 onwards. Biosample Type: Maternal Serum Screening (MSS) Access Period: July 2020 – July 2023 GenV Cohort:¹ Participating birth mothers of GenV children born from 05/12/2020 onwards. Biosample Type: Non-Invasive Prenatal Testing (NIPT) Access Period: July 2021 – May 2023 GenV Cohort:¹ Participating birth mothers of GenV children born from 05/12/2020 onwards ¹Some consent wording differed a little for parents with children born up to July 2021. This was during our Vanguard and scaling-up phases. This may alter how we access data and samples for some participants.