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Home\For researchers\Working papers\Involvement of Children and Young People in Longitudinal Health Research Back Involvement of Children and Young People in Longitudinal Health Research Involvement of Children and Young People in Longitudinal Health Research Authors Katherine A Wyatt,1 Jessica Bell2, William Siero1,3, Melissa Wake1,3, Elizabeth K Hughes1,3,4 Affiliation 1 – Murdoch Children’s Research Institute, Royal Children’s Hospital, Parkville, Victoria, Australia 2 – School of Law, University of Warwick, Coventry, UK 3 – Department of Paediatrics, The University of Melbourne, Parkville, Victoria, Australia 4 – School of Psychological Sciences, The University of Melbourne, Parkville, Victoria, Australia Publication date February 2026 Series number 2026-01 Abstract This knowledge-sharing exercise with longitudinal cohort studies globally, driven by Generation Victoria (GenV) and the Born in Scotland (BiS) Data Trust, considered the involvement of children and young people (and/or their representatives) in the design and governance of health research. This paper builds on the broader literature, filling the gap of unpublished experience and providing insights into the strategies and learnings of consumer and community involvement for longitudinal research and birth cohort studies. Keywords CCI, PPIE, involvement, consumer, child, young people, longitudinal, birth cohort, health research, GenV Citation Wyatt KA, Bell J, Siero W, Wake M, Hughes EK (2026). Involvement of Children and Young People in Longitudinal Health Research – a knowledge-sharing exercise. Generation Victoria Working Paper 2026-01. DOI: 10.25374/MCRI.31273813 EXECUTIVE SUMMARY PAPER DOWNLOAD